Hunter Mary’s Story by her Mom Carrie
On July 1st 2005, I got my daughter ready and sent her to her summer day camp at the Boys and Girls Club. I brushed and braided her hair and packed her bag with her swimsuit and dropped her off. A few hours later, the club called me and said Hunter was sick and had a lump in her neck. When I went to pick her up, I almost fainted. My daughter had a softball size mass growing out of her neck. There was a medistinal mass in my daughter so big it pushed her heart over and popped out of her lymph node. It was the scariest moment of my life..or so I thought. My daughter’s chest mass was the largest the hospital had ever seen. We almost lost her in ICU as they tried to intubate her for an aspiration and couldnt get the tube out due to the swelling in her throat. The aspiration confirmed she had TCELL HIGH RISK ALL.
Hunter did treatment and responded very well. After a long two and a half years, we were finally all done. She was in remission – I was so happy, exhausted and terrified it would come back. She had lost the ability to walk due to muscle wasting and vincristine. She had a wheelchair for a few months at school and was carried up and down stairs at home. We saw her slowly bounce back. Her hair came back brown and wavy and every single apt , cough or sneeze made me hysterical. She was in remission for 14 months.
In December, 2008 my daughter started not feeling well. I was concerned, but kept her home from school and she said ‘No mommy, I feel SICK again.” The next day or so , she showed me a bruise where she said another student had bumped into her. I was in awe. My daughter’s whole chest was a huge bruise. It was purple and blue and I was in denial for a minute. I went to the school and had a meeting with the principal. I showed her Hunters chest and said HOW HARD DID HE HIT HER? Then I calmed down and made an apt at Maine Childrens Cancer Program. Hunter looked sick. She looked pale and if I touched her arm it would bruise. Her skin was like porcelain.