Jordy’s Story
Jordan was diagnosed with Leukaemia in Feb 1999 when he was 13mths old. We were originally told that he would need to have 2 years of chemotherapy. We started treatment the day he was diagnosed and we went from our doctors to our local hospital. We were then transferred straight to Great Ormond Street. This day changed our lives forever.
Jordan seemed to respond well to treatment and when he was nearly at the end of the 2 years, we were told that for boys the protocol had changed and he would now require 3 years of chemo. He completed 3 years and finished treatment in 2002. Jordy then relapsed 6 months later so had to start another 3 years of treatment.
Again, he seemed to be doing really well. He didn’t seem to spend that much time in hospital this time. He had relapsed right at the end of the 3 years of treatment.
It was then decided that he should have a bone marrow transplant at Great Ormond Street Hospital. He was admitted in Feb 2005 and had the transplant on 10th March 2005. Jordan was so brave throughout his treatment and was finally allowed home at the end of April 2005. He seemed to be doing really well and went from strength to strength. We sort of returned to a normal life. Jordy went back to school and it was so nice for us all to be back at home together again.
18mths later in Aug 2006, Jordan started complaining of having headaches. We took him back to hospital where he had some tests done and we were then told that the Leukaemia had returned and this time there wasn’t any treatment they could give him. This was the worst day of our lives. We really thought Jordan had beaten this terrible disease as he had been so well since the transplant.
We took Jordan home and he was given some pain relief medication. That Christmas, Jordan had the best Christmas ever. He really seemed so well. It was hard to believe what was going on inside his body. After Christmas, Jordan was in and out of daycare at our local hospital where he seemed to have blood transfusions or platelets every other day. At the end of February, Jordan was at home with us and one night he starting having a seizure. We phoned an ambulance and he was admitted to our local hospital – sadly this was the last time Jordy was at home with us as one week later on 2nd March 2007, Jordy lost his battle with Leukaemia and passed away while sleeping.
Jordy was so brave throughout his 8 years of treatment. We all miss him so much and our lives will never be the same again.
